We are working to give people affected by CMT the best possible quality of life we can – by providing people with the right information about management and coping strategies, the right information and advice about daily living issues, support with benefits claims – everything that someone living with an incurable disease needs to know – and is rarely told!
About Charcot-Marie-Tooth
Charcot
- -Marie-Tooth is a UK-based charity that works to support those living with Charcot-Marie-Tooth Disease (CMT). The organisation works tirelessly to ensure it gives people affected by CMT the best possible quality of life we can – by providing people with the right information about management and coping strategies, the right information and advice about daily living issues, support with benefits claims – everything that someone living with an incurable disease needs to know – and is rarely told!
The aims and objectives of Charcot-Marie-Tooth include:
- To offer assistance and support to people who have Charcot-Marie-Tooth Disease.
- To initiate, co-ordinate, promote and support research into CMT and its effects.
- To stimulate medical education on the subject of CMT.
- To offer assistance and support to those who care for people who have CMT.
- To spread awareness of the condition to health professionals and the general public.
Learn More About Charcot-Marie-Tooth
There are over 100 variations of CMT and people can be affected very differently, even those with the same type of CMT. CMT is also known as Hereditary Motor and Sensory Neuropathy or Peroneal Muscular Atrophy, and it is the most common inherited neurological disease in the world. Despite the charity being so small, Charcot-Marie-Tooth already have two people working there who have the condition, and this organisation is the only charity dedicated to CMT in the UK.
How to Support CMT
There are many ways that you can support and get involved with CMT today, including the following ideas:
Become a Member
Becoming a CMTUK member today will give you access to news of research programmes in more detail, as well as resources for managing CMT. Plus your donation will help CMTUK support those living with CMT.
Giving with Confidence
Charcot-Marie-Tooth UK is voluntarily registered with the Fundraising Regulator and adhere to the Fundraising Code whilst being held accountable its undraising activities. CMT promises to always be honest, open and accountable with its fundraising, helping you to give with confidence.
CMT Kids
CMT Kids includes a group of young people who all share a very significant part of their lives – having CMT. The group’s aim is to help young individuals who suffer from CMT: whether you have just been diagnosed, are a long term sufferer, a parent/family member or even a sibling. The group offers support and welcomes others who share this disability to let them know they are not alone, and that ‘together we are stronger’.
How To Raise Free Donations for Charcot-Marie-Tooth
- Sign up to Savoo for free to start saving money and raising free donations
- Click 'Support a Charity' to browse our charity directory
- Search for CMT or browse by category, or select another charity close to your heart
- Ensure you're signed in to your Savoo account and click 'Support this charity' on the page of your choice
- Begin using our discount codes and deals to save at your favourite stores
- Check out your account to see how much you've raised so far every time you place an order through Savoo!
Contact Charcot-Marie-Tooth Today
Charcot-Marie-Tooth can be contacted via telephone and email. For telephone enquiries please call 03003236316 or email them at enquiries@cmt.org.uk
For more information, please visit the CMT website directly.
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